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Name Gender Mutation Age Affected Age Vision Trigger History Colorblind Idebenone Location Heritage Symptoms Comments
NAMEGENDERMUTATIONAGE AFFECTEDAGEVISIONPOTENTIAL TRIGGER# OF AFFECTED FAMILY MEMBERSCOLOR
BLIND?		IDEBE
NONE?		LOCATIONMATERNAL HERITAGEADDITIONAL SYMPTOMSADDITIONAL COMMENTS
James
Ferguson		MaleDon't know2338Counting Fingers
Light Perception Only		Physical Injury/Trauma0NoNoUnited KingdomAnglo SaxonNone
Michael
McCray		MaleDon't know1654Left: 20/400
Right: 20/400		Other/Unknown0NoNoUnited StatesAnglo SaxonNone
Private
Unavailable		MaleDon't know1847Counting Fingers
Counting Fingers		Other/Unknown3NoNoAustraliaAustralianNone
Pat
Morgan		FemaleDon't know5163Counting Fingers
Counting Fingers		Other/Unknown3NoNoUnited KingdomWelshHeadaches, Restless Leg Syndrome, Eye Pain, Auditory
John
Coughlin		MaleDon't know1166Left: 20/300
Right: 20/800		Other/Unknown1ModerateNoUnited States
Latitude:
27.9812		Anglo SaxonNone
Ronny
Wolf		MaleDon't know3747Left: 20/6000
Right: 20/2400		Other/Unknown2ModerateYesNetherlandsEuropeanRestless Leg Syndrome, Peripheral Neuropathy, Fatigue, Excessive Sweating, Eye Pain, MS, Parkinson, Other
Chrissie
Powell		FemaleDon't know2734Left: 20/0
Right: 20/0		Other/Unknown0ModerateNoUnited KingdomAnglo SaxonHeadaches
John
Coughlin		MaleDon't know112021Left: 20/200
Right: 20/300		Other/Unknown1ModerateNoUnited States
Latitude:
27.9811		Anglo SaxonNone
Robert
Driscoll		MaleDon't know1344Left: 20/600
Right: 20/600		Other/Unknown0ModerateNoUnited KingdomIrishHeadaches
Cliff
Ghrigsby		MaleDon't know144Left: 20/400
Right: 20/400		Other/Unknown4ModerateNoUnited StatesAnglo SaxonNone
Keith
Ellis		MaleDon't know1531Left: 20/400
Right: 20/1000		Other/Unknown2NoNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, Parkinson, Auditory
Austin
Maier		MaleDon't know2231Left: 20/125
Right: 20/125		Alcohol0ModerateNoUnited StatesAnglo SaxonNone
George
Opie		MaleDon't know1755Light Perception Only
Light Perception Only		Other/Unknown1SevereYesUnited States
Latitude:
38.7619		CaucasianOther
Austin
Maier		MaleDon't know2231Left: 20/125
Right: 20/125		Alcohol0ModerateNoUnited StatesAnglo SaxonNone
Nick
Esposito		Male34601942Left: 20/400
Right: 20/500		Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Fatigue
Alex
Brown		Male34601044Left: 20/140
Right: 20/90		Environmental Toxins1NoNoUnited StatesAnglo SaxonNone
Pete
Sheppard		Male3460221822Counting Fingers
Counting Fingers		Illness1ModerateNoUnited KingdomBritishHeadaches, Peripheral Neuropathy, Fatigue
Laura
Kolbe		Female34603044Light Perception Only
Light Perception Only		Other/Unknown1NoNoUnited KingdomEnglishMS, Auditory
Keith
McGovern		Male3460815Left: 20/400
Right: 20/600		Other/Unknown1ModerateNoUnited StatesAmericanNone
Lisa
MacGregor		Female3460342021Left: 20/63
Right: 20/60		Other/Unknown0NoNoCanada
Latitude:
49.8833		CaucasianHeadaches
Alexandre
Fonseca		Male34602429Left: 20/600
Right: 20/600		Other/Unknown0ModerateNoBrazilBrazilianHeadaches
Elaine
Leyba-Sauceda		Female94384052Left: 20/200
Right: 20/400		Unknown3NoNoUnited StatesUnknownHeadaches, Restless Leg Syndrome, Fatigue, MS-like Symptoms, Other
Brandon
Coleman		Male117781826Left: 20/80
Right: 20/125		Other...0ModerateYesPortsmouth United Kingdom1None
Jeremy
Poincenot		Male117781931Counting Fingers
Counting Fingers		Other/Unknown1NoYesUnited StatesDaneNone
Juha
Pilli-sihvola		Male117785668Counting Fingers
Right: 20/800		Unknown0NoNoFinland
Latitude:
62.3801		FinnHeadaches, Fatigue
Alex
Wisehart		Male117781625Counting Fingers
Counting Fingers		Environmental Toxins2SevereYesUnited StatesCaucasianNone
Fred
Wiggins		Male117786271Counting Fingers
Counting Fingers		Physical Injury/Trauma0NoYesUnited StatesAmericanHeadaches, Fatigue
Ioannis
Gman		Male117782141Left: 20/200
Right: 20/500		Other/Unknown0NoNoGreece
Latitude:
38.046		GreekNone
Pamela
Whittington Becker		Female117785263Light Perception Only
Right: 20/600		Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Eye Pain
Private
Unavailable		Female11778617Left: 20/500
Right: 20/500		Other/Unknown3NoNoUnited StatesAnglo SaxonNone
Brandon
Batten		Male117781326Left: 20/400
Right: 20/400		Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
Helene
Merker		Female117785668Counting Fingers
Counting Fingers		Other/Unknown0NoNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Auditory
Stef
Gore		Female117781730Counting Fingers
Light Perception Only		Unknown0ModerateYesAustraliaAustralianNone
Shirley
Blowers		Female117785262Left: 20/400
Right: 20/400		Stress/Life Event0NoYesUnited KingdomEnglishFatigue, Eye Pain
s
j a		Male117782028Counting Fingers
Counting Fingers		Other/Unknown0NoYesUnited KingdomEnglishNone
Jared
Hara		Male11778118Light Perception Only
Light Perception Only		Environmental Toxins0NoNoUnited StatesCaucasianHeadaches
Wayne
Daniels		Male117782162Left: 20/200
Right: 20/400		Physical Injury/Trauma0ModerateNoUnited States
Latitude:
28.9489		Anglo SaxonNone
Private
Unavailable		Male117781930Light Perception Only
Light Perception Only		Unknown0ModerateNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain
Scott
Robinson		Male117781627Left: 20/200
Right: 20/200		Other/Unknown1NoNoUnited StatesAmericanFatigue
William
(Bill) Reid		Male117782669Left: 20/1200
Right: 20/375		Other/Unknown3NoNoAustraliaEnglishRestless Leg Syndrome, Excessive Sweating, Auditory
Jon
Kyle Cauchi		Male117781130Left: 20/400
Right: 20/800		Other/Unknown0ModerateNoUnited StatesIrishHeadaches, Restless Leg Syndrome, Fatigue, Eye Pain
Jeremy
McClure		Male117781533Counting Fingers
Counting Fingers		Other/Unknown5ModerateNoAustraliaAnglo SaxonOther
Meulle
Aurélie		Female117782241Left: 20/1200
Right: 20/1200		Unknown1NoNoFranceBelgianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain
Donovan
Justin Tose		Male117781139Counting Fingers
Counting Fingers		Unknown1ModerateNoSouth AfricaScotRestless Leg Syndrome, Eye Pain
Lewis
Watkins		Male117781932Counting Fingers
Counting Fingers		Other/Unknown0NoNoUnited KingdomWelshHeadaches, Fatigue
Gail
Buhler		Female117784352Left: 20/700
Right: 20/650		Other/Unknown1ModerateNoUnited StatesCaucasianNone
Chiang
Chia-en		Female11778241Left: 20/550
Right: 20/450		Stress/Life Event3ModerateNoTaiwan, Province of ChinaBelgianEye Pain
Jacqueline
Mack Cacenski		Female117782256Counting Fingers
Counting Fingers		Environmental Toxins6ModerateNoUnited StatesCaucasianHeadaches, Fatigue
Noe
Cano		Male11778042Counting Fingers
Counting Fingers		Alcohol0ModerateYesUnited StatesMexicanFatigue
Brenda
Smith		Male117782354Light Perception Only
Counting Fingers		Illness6NoNoAustraliaAnglo SaxonRestless Leg Syndrome, Peripheral Neuropathy, Fatigue
Naomi
Harrington		Female117782032Counting Fingers
Counting Fingers		Other/Unknown1ModerateYesCanadaJapaneseNone
Eugene
G. Schwartz		Male117781768Left: 20/500
Right: 20/600		Other/Unknown0NoNoUnited StatesGermanNone
Private
Unavailable		Male117781835Left: 20/800
Right: 20/800		Stress/Life Event0ModerateYesUnited StatesAmericanEye Pain
Hannah
Averill		Female117781830Light Perception Only
Counting Fingers		Unknown2ModerateNoNew ZealandEuropeanHeadaches, Fatigue, Eye Pain, MS-like Symptoms, Other
Sue
Cyr Gilman		Female117783850Left: 20/400
Right: 20/600		Stress/Life Event3ModerateNoUnited States
Latitude:
44.0992		Anglo SaxonHeadaches, Peripheral Neuropathy, Fatigue, MS
Stefan
Hartmann		Male117781730Left: 20/550
Right: 20/400		Other/Unknown1NoNoGermanyGermanFatigue
Luke
Krickenbarger		Male117782238Left: 20/400
Right: 20/400		Other/Unknown0ModerateNoUnited StatesIrishNone
miguel
magallanes		Male11778820Left: 20/800
Right: 20/800		Other/Unknown0ModerateYesUnited States Minor Outlying IslandsAmericanHeadaches
Matt
Leverington		Male117782231Left: 20/400
Right: 20/400		Unknown0NoYesUnited KingdomAnglo SaxonFatigue, Eye Pain, Other
Luuk
van der Duim		Male117783144Left: 20/66
Right: 20/50		Alcohol0ModerateNoNetherlands
Latitude:
53.2185		DutchNone
Jamie
Scott		Male117781736Counting Fingers
Counting Fingers		Smoking1ModerateNoUnited KingdomBritishHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Auditory
Peter
Wolfe		Male117781635Light Perception Only
Light Perception Only		Other/Unknown1SevereNoUnited StatesIrishNone
Maria
Johnson		Female117784957Counting Fingers
Counting Fingers		Prescription Drugs0ModerateNoUnited StatesAnglo SaxonNone
Maria
Pikulski		Female117784259Left: 20/0
Right: 20/0		Other/Unknown0ModerateNoUnited KingdomBritishFatigue, Excessive Sweating, MS, Auditory
Alvaro
Rueda Chifflet		Male117782239Counting Fingers
Counting Fingers		Unknown0ModerateNoSwedenOthersNone
Mark
Delmege		Male117782032Left: 20/450
Right: 20/450		Physical Injury/Trauma0NoNoUnited StatesAmericanNone
Bruno
Montbleau		Male117781940Left: 20/700
Right: 20/415		Physical Injury/Trauma2SevereNoCanadaCanadianHeadaches, Fatigue, Eye Pain
Eric
Nelson		Male117783364Left: 20/400
Right: 20/800		Unknown0ModerateNoUnited StatesAnglo SaxonNone
Lori
Black		Female1177822021Left: 20/400
Right: 20/400		Other/Unknown2ModerateYesUnited StatesArmenianNone
James
Crawford		Male11778856Left: 20/400
Right: 20/1200		Other/Unknown0NoNoAustraliaEnglishHeadaches, Fatigue, Excessive Sweating
Christy
Damio Caroleo		Female117781344Left: 20/800
Right: 20/400		Stress/Life Event3ModerateNoUnited StatesIrishFatigue
Bryce
Anderson		Male117782025Counting Fingers
Right: 20/2800		Physical Injury/Trauma0SevereNoUnited StatesGermanHeadaches, Eye Pain
Christine
Herbst		Female117786473Counting Fingers
Counting Fingers		Stress/Life Event2SevereNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, MS-like Symptoms
Private
Unavailable		Female127192938Left: 20/0
Light Perception Only		Other/Unknown1ModerateNoUnited KingdomAnglo SaxonHeadaches
Baiba
Vanaga		Female136375463Left: 20/400
Right: 20/600		Unknown0ModerateYesLatviaAnglo SaxonNone
Francesco
Cefarelli		Male142581832Left: 20/2
Right: 20/20		Smoking1ModerateYesItalyItalianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
Giacomo
Padron Aicardi		Male144841627Left: 20/400
Right: 20/700		Prescription Drugs3SevereYesCanadaCanadianHeadaches, Eye Pain
Joe
Brinkley		Male144841636Left: 20/300
Right: 20/340		Alcohol0ModerateNoUnited StatesAnglo SaxonPeripheral Neuropathy, Eye Pain
Brian
Weeden		Male144842846Light Perception Only
Light Perception Only		Other/Unknown3NoNoUnited StatesCaucasianFatigue, Excessive Sweating, MS-like Symptoms
Shelly
Maki Mercer		Female144843561Left: 20/200
Right: 20/25		Stress/Life Event0ModerateYesUnited StatesEnglishPeripheral Neuropathy, Fatigue, Eye Pain, MS, Other
Bob
Banks		Male144845561Left: 20/600
Right: 20/600		Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
Private
Unavailable		Male14484013Left: 20/20
Right: 20/20		Other/Unknown0NoNoUnited States
Latitude:
42.022		AmericanFatigue, Excessive Sweating, Other
Sharon
Macdonald		Female144843543Light Perception Only
Right: 20/400		Illness0ModerateNoUnited KingdomScotHeadaches, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
Private
Unavailable		Female144841624Left: 20/600
Right: 20/1000		Physical Injury/Trauma1NoNoUnited StatesEuropeanEye Pain, Auditory
Connor
Hook		Male144841931Left: 20/500
Right: 20/800		Alcohol1ModerateNoUnited StatesCaucasianHeadaches, Fatigue, Eye Pain, MS

11778144843460Other
Vision Average:20/54420/43420/34520/232
Vision Median:20/41520/40020/40020/200
Vision Mode:20/40020/60020/60020/400
Vision Range:2800980540600
Avg Age Onset:24242135

Overall Average Age of Onset: 23
Male Avg Age of Onset:19
Female Avg Age of Onset:32
Total participants: 85
58 Males and 27 Females
Males make up 68% of sample group
and females make up 32% of sample group


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