1.Your facebook ID is .
This will not be published, but will be used to identify you as a unique user on this site.2. Please enter as much data as possible. If you don't know your trigger, please choose "Don't Know".
3. If you have been given your vision in a format other than 20/x (e.g. 5/50) you may simply multiply both portions of the snellen fraction by the same number so that the numerator equals 20. The Snellen number (LogMAR number) remains the same. (e.g. 1/60 = (1*20)/(60*20) = 20/1200. If your vision is categorized as "Counting Fingers" or "Light Perception", simply enter CF or LP into the boxes accordingly.
4. You may organize the table by data points in a column by clicking on the links at the top of the table. (e.g. Name, Gender, Mutation, etc)
5. The form to enter your data is the last row in the table below, UNLESS you have already entered data. If you have already entered data, your row in the table will be editable. By default they are arranged alphabetically. Once you enter your data please click the "Submit" button which is either: below the table (For new users), or in the last column (For return visitors).
6. Advanced sorting options are available on the "View Only" page. These options allow you to sort the database by more than one field at a time. (e.g. Sort by gender, then vision).
Thank you for your data. :)
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Name | Gender | Mutation | Age Affected | Age | Vision | Trigger | History | Colorblind | Idebenone | Location | Heritage | Symptoms | Comments |
NAME | GENDER | MUTATION | AGE AFFECTED | AGE | VISION | POTENTIAL TRIGGER | # OF AFFECTED FAMILY MEMBERS | COLOR BLIND? | IDEBE NONE? | LOCATION | MATERNAL HERITAGE | ADDITIONAL SYMPTOMS | ADDITIONAL COMMENTS |
Private Unavailable | Female | 11778 | 6 | 17 | Left: 20/500 Right: 20/500 | Other/Unknown | 3 | No | No | United States | Anglo Saxon | None | |
Alex Brown | Male | 3460 | 10 | 44 | Left: 20/140 Right: 20/90 | Environmental Toxins | 1 | No | No | United States | Anglo Saxon | None | |
Alex Wisehart | Male | 11778 | 16 | 25 | Counting Fingers Counting Fingers | Environmental Toxins | 2 | Severe | Yes | United States | Caucasian | None | |
Alexandre Fonseca | Male | 3460 | 24 | 29 | Left: 20/600 Right: 20/600 | Other/Unknown | 0 | Moderate | No | Brazil | Brazilian | Headaches | |
Private Unavailable | Female | 14484 | 16 | 24 | Left: 20/600 Right: 20/1000 | Physical Injury/Trauma | 1 | No | No | United States | European | Eye Pain, Auditory | |
Alvaro Rueda Chifflet | Male | 11778 | 22 | 39 | Counting Fingers Counting Fingers | Unknown | 0 | Moderate | No | Sweden | Others | None | |
Austin Maier | Male | Don't know | 22 | 31 | Left: 20/125 Right: 20/125 | Alcohol | 0 | Moderate | No | United States | Anglo Saxon | None | |
Austin Maier | Male | Don't know | 22 | 31 | Left: 20/125 Right: 20/125 | Alcohol | 0 | Moderate | No | United States | Anglo Saxon | None | |
Baiba Vanaga | Female | 13637 | 54 | 63 | Left: 20/400 Right: 20/600 | Unknown | 0 | Moderate | Yes | Latvia | Anglo Saxon | None | |
Bob Banks | Male | 14484 | 55 | 61 | Left: 20/600 Right: 20/600 | Other/Unknown | 0 | Moderate | No | United States | Anglo Saxon | None | |
Brandon Batten | Male | 11778 | 13 | 26 | Left: 20/400 Right: 20/400 | Other/Unknown | 0 | Moderate | No | United States | Anglo Saxon | None | |
Brandon Coleman | Male | 11778 | 18 | 26 | Left: 20/80 Right: 20/125 | Other... | 0 | Moderate | Yes | Portsmouth United Kingdom | 1 | None | |
Brenda Smith | Male | 11778 | 23 | 54 | Light Perception Only Counting Fingers | Illness | More than 5 | No | No | Australia | Anglo Saxon | Restless Leg Syndrome, Peripheral Neuropathy, Fatigue | |
Brian Weeden | Male | 14484 | 28 | 46 | Light Perception Only Light Perception Only | Other/Unknown | 3 | No | No | United States | Caucasian | Fatigue, Excessive Sweating, MS-like Symptoms | |
Bruno Montbleau | Male | 11778 | 19 | 40 | Left: 20/700 Right: 20/415 | Physical Injury/Trauma | 2 | Severe | No | Canada | Canadian | Headaches, Fatigue, Eye Pain | |
Bryce Anderson | Male | 11778 | 20 | 25 | Counting Fingers Right: 20/2800 | Physical Injury/Trauma | 0 | Severe | No | United States | German | Headaches, Eye Pain | |
Private Unavailable | Male | 14484 | 0 | 13 | Left: 20/20 Right: 20/20 | Other/Unknown | 0 | No | No | United States Latitude: 42.022 | American | Fatigue, Excessive Sweating, Other | |
Chiang Chia-en | Female | 11778 | 2 | 41 | Left: 20/550 Right: 20/450 | Stress/Life Event | 3 | Moderate | No | Taiwan, Province of China | Belgian | Eye Pain | |
Chrissie Powell | Female | Don't know | 27 | 34 | Left: 20/0 Right: 20/0 | Other/Unknown | 0 | Moderate | No | United Kingdom | Anglo Saxon | Headaches | |
Christine Herbst | Female | 11778 | 64 | 73 | Counting Fingers Counting Fingers | Stress/Life Event | 2 | Severe | No | United States | Anglo Saxon | Headaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, MS-like Symptoms | |
Christy Damio Caroleo | Female | 11778 | 13 | 44 | Left: 20/800 Right: 20/400 | Stress/Life Event | 3 | Moderate | No | United States | Irish | Fatigue | |
Cliff Ghrigsby | Male | Don't know | 1 | 44 | Left: 20/400 Right: 20/400 | Other/Unknown | 4 | Moderate | No | United States | Anglo Saxon | None | |
Connor Hook | Male | 14484 | 19 | 31 | Left: 20/500 Right: 20/800 | Alcohol | 1 | Moderate | No | United States | Caucasian | Headaches, Fatigue, Eye Pain, MS | |
Donovan Justin Tose | Male | 11778 | 11 | 39 | Counting Fingers Counting Fingers | Unknown | 1 | Moderate | No | South Africa | Scot | Restless Leg Syndrome, Eye Pain | |
Elaine Leyba-Sauceda | Female | 9438 | 40 | 52 | Left: 20/200 Right: 20/400 | Unknown | 3 | No | No | United States | Unknown | Headaches, Restless Leg Syndrome, Fatigue, MS-like Symptoms, Other | |
Private Unavailable | Male | 11778 | 18 | 35 | Left: 20/800 Right: 20/800 | Stress/Life Event | 0 | Moderate | Yes | United States | American | Eye Pain | |
Eric Nelson | Male | 11778 | 33 | 64 | Left: 20/400 Right: 20/800 | Unknown | 0 | Moderate | No | United States | Anglo Saxon | None | |
Eugene G. Schwartz | Male | 11778 | 17 | 68 | Left: 20/500 Right: 20/600 | Other/Unknown | 0 | No | No | United States | German | None | |
Francesco Cefarelli | Male | 14258 | 18 | 32 | Left: 20/2 Right: 20/20 | Smoking | 1 | Moderate | Yes | Italy | Italian | Headaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms | |
Fred Wiggins | Male | 11778 | 62 | 71 | Counting Fingers Counting Fingers | Physical Injury/Trauma | 0 | No | Yes | United States | American | Headaches, Fatigue | |
Gail Buhler | Female | 11778 | 43 | 52 | Left: 20/700 Right: 20/650 | Other/Unknown | 1 | Moderate | No | United States | Caucasian | None | |
Private Unavailable | Female | 12719 | 29 | 38 | Left: 20/0 Light Perception Only | Other/Unknown | 1 | Moderate | No | United Kingdom | Anglo Saxon | Headaches | |
George Opie | Male | Don't know | 17 | 55 | Light Perception Only Light Perception Only | Other/Unknown | 1 | Severe | Yes | United States Latitude: 38.7619 | Caucasian | Other | |
Giacomo Padron Aicardi | Male | 14484 | 16 | 27 | Left: 20/400 Right: 20/700 | Prescription Drugs | 3 | Severe | Yes | Canada | Canadian | Headaches, Eye Pain | |
Hannah Averill | Female | 11778 | 18 | 30 | Light Perception Only Counting Fingers | Unknown | 2 | Moderate | No | New Zealand | European | Headaches, Fatigue, Eye Pain, MS-like Symptoms, Other | |
Helene Merker | Female | 11778 | 56 | 68 | Counting Fingers Counting Fingers | Other/Unknown | 0 | No | No | Australia | Anglo Saxon | Headaches, Restless Leg Syndrome, Auditory | |
Ioannis Gman | Male | 11778 | 21 | 41 | Left: 20/200 Right: 20/500 | Other/Unknown | 0 | No | No | Greece Latitude: 38.046 | Greek | None | |
Jacqueline Mack Cacenski | Female | 11778 | 22 | 56 | Counting Fingers Counting Fingers | Environmental Toxins | More than 5 | Moderate | No | United States | Caucasian | Headaches, Fatigue | |
James Crawford | Male | 11778 | 8 | 56 | Left: 20/400 Right: 20/1200 | Other/Unknown | 0 | No | No | Australia | English | Headaches, Fatigue, Excessive Sweating | |
James Ferguson | Male | Don't know | 23 | 38 | Counting Fingers Light Perception Only | Physical Injury/Trauma | 0 | No | No | United Kingdom | Anglo Saxon | None | |
Jamie Scott | Male | 11778 | 17 | 36 | Counting Fingers Counting Fingers | Smoking | 1 | Moderate | No | United Kingdom | British | Headaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Auditory | |
Jared Hara | Male | 11778 | 11 | 8 | Light Perception Only Light Perception Only | Environmental Toxins | 0 | No | No | United States | Caucasian | Headaches | |
Jeremy McClure | Male | 11778 | 15 | 33 | Counting Fingers Counting Fingers | Other/Unknown | 5 | Moderate | No | Australia | Anglo Saxon | Other | |
Jeremy Poincenot | Male | 11778 | 19 | 31 | Counting Fingers Counting Fingers | Other/Unknown | 1 | No | Yes | United States | Dane | None | |
Joe Brinkley | Male | 14484 | 16 | 36 | Left: 20/300 Right: 20/340 | Alcohol | 0 | Moderate | No | United States | Anglo Saxon | Peripheral Neuropathy, Eye Pain | |
John Coughlin | Male | Don't know | 11 | 66 | Left: 20/300 Right: 20/800 | Other/Unknown | 1 | Moderate | No | United States Latitude: 27.9812 | Anglo Saxon | None | |
John Coughlin | Male | Don't know | 11 | 2021 | Left: 20/200 Right: 20/300 | Other/Unknown | 1 | Moderate | No | United States Latitude: 27.9811 | Anglo Saxon | None | |
Jon Kyle Cauchi | Male | 11778 | 11 | 30 | Left: 20/400 Right: 20/800 | Other/Unknown | 0 | Moderate | No | United States | Irish | Headaches, Restless Leg Syndrome, Fatigue, Eye Pain | |
Juha Pilli-sihvola | Male | 11778 | 56 | 68 | Counting Fingers Right: 20/800 | Unknown | 0 | No | No | Finland Latitude: 62.3801 | Finn | Headaches, Fatigue | |
Keith Ellis | Male | Don't know | 15 | 31 | Left: 20/400 Right: 20/1000 | Other/Unknown | 2 | No | No | United States | Anglo Saxon | Headaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, Parkinson, Auditory | |
Keith McGovern | Male | 3460 | 8 | 15 | Left: 20/400 Right: 20/600 | Other/Unknown | 1 | Moderate | No | United States | American | None | |
Laura Kolbe | Female | 3460 | 30 | 44 | Light Perception Only Light Perception Only | Other/Unknown | 1 | No | No | United Kingdom | English | MS, Auditory | |
Lewis Watkins | Male | 11778 | 19 | 32 | Counting Fingers Counting Fingers | Other/Unknown | 0 | No | No | United Kingdom | Welsh | Headaches, Fatigue | |
Lisa MacGregor | Female | 3460 | 34 | 2021 | Left: 20/63 Right: 20/60 | Other/Unknown | 0 | No | No | Canada Latitude: 49.8833 | Caucasian | Headaches | |
Lori Black | Female | 11778 | 2 | 2021 | Left: 20/400 Right: 20/400 | Other/Unknown | 2 | Moderate | Yes | United States | Armenian | None | |
Luke Krickenbarger | Male | 11778 | 22 | 38 | Left: 20/400 Right: 20/400 | Other/Unknown | 0 | Moderate | No | United States | Irish | None | |
Luuk van der Duim | Male | 11778 | 31 | 44 | Left: 20/66 Right: 20/50 | Alcohol | 0 | Moderate | No | Netherlands Latitude: 53.2185 | Dutch | None | |
Maria Johnson | Female | 11778 | 49 | 57 | Counting Fingers Counting Fingers | Prescription Drugs | 0 | Moderate | No | United States | Anglo Saxon | None | |
Maria Pikulski | Female | 11778 | 42 | 59 | Left: 20/0 Right: 20/0 | Other/Unknown | 0 | Moderate | No | United Kingdom | British | Fatigue, Excessive Sweating, MS, Auditory | |
Mark Delmege | Male | 11778 | 20 | 32 | Left: 20/450 Right: 20/450 | Physical Injury/Trauma | 0 | No | No | United States | American | None | |
Matt Leverington | Male | 11778 | 22 | 31 | Left: 20/400 Right: 20/400 | Unknown | 0 | No | Yes | United Kingdom | Anglo Saxon | Fatigue, Eye Pain, Other | |
Meulle Aurélie | Female | 11778 | 22 | 41 | Left: 20/1200 Right: 20/1200 | Unknown | 1 | No | No | France | Belgian | Headaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain | |
Michael McCray | Male | Don't know | 16 | 54 | Left: 20/400 Right: 20/400 | Other/Unknown | 0 | No | No | United States | Anglo Saxon | None | |
miguel magallanes | Male | 11778 | 8 | 20 | Left: 20/800 Right: 20/800 | Other/Unknown | 0 | Moderate | Yes | United States Minor Outlying Islands | American | Headaches | |
Private Unavailable | Male | Don't know | 18 | 47 | Counting Fingers Counting Fingers | Other/Unknown | 3 | No | No | Australia | Australian | None | |
Naomi Harrington | Female | 11778 | 20 | 32 | Counting Fingers Counting Fingers | Other/Unknown | 1 | Moderate | Yes | Canada | Japanese | None | |
Nick Esposito | Male | 3460 | 19 | 42 | Left: 20/400 Right: 20/500 | Other/Unknown | 0 | Moderate | No | United States | Anglo Saxon | Headaches, Fatigue | |
Noe Cano | Male | 11778 | 0 | 42 | Counting Fingers Counting Fingers | Alcohol | 0 | Moderate | Yes | United States | Mexican | Fatigue | |
Pamela Whittington Becker | Female | 11778 | 52 | 63 | Light Perception Only Right: 20/600 | Other/Unknown | 0 | Moderate | No | United States | Anglo Saxon | Headaches, Eye Pain | |
Pat Morgan | Female | Don't know | 51 | 63 | Counting Fingers Counting Fingers | Other/Unknown | 3 | No | No | United Kingdom | Welsh | Headaches, Restless Leg Syndrome, Eye Pain, Auditory | |
Pete Sheppard | Male | 3460 | 22 | 1822 | Counting Fingers Counting Fingers | Illness | 1 | Moderate | No | United Kingdom | British | Headaches, Peripheral Neuropathy, Fatigue | |
Peter Wolfe | Male | 11778 | 16 | 35 | Light Perception Only Light Perception Only | Other/Unknown | 1 | Severe | No | United States | Irish | None | |
Robert Driscoll | Male | Don't know | 13 | 44 | Left: 20/600 Right: 20/600 | Other/Unknown | 0 | Moderate | No | United Kingdom | Irish | Headaches | |
Ronny Wolf | Male | Don't know | 37 | 47 | Left: 20/6000 Right: 20/2400 | Other/Unknown | 2 | Moderate | Yes | Netherlands | European | Restless Leg Syndrome, Peripheral Neuropathy, Fatigue, Excessive Sweating, Eye Pain, MS, Parkinson, Other | |
s j a | Male | 11778 | 20 | 28 | Counting Fingers Counting Fingers | Other/Unknown | 0 | No | Yes | United Kingdom | English | None | |
Scott Robinson | Male | 11778 | 16 | 27 | Left: 20/200 Right: 20/200 | Other/Unknown | 1 | No | No | United States | American | Fatigue | |
Sharon Macdonald | Female | 14484 | 35 | 43 | Light Perception Only Right: 20/400 | Illness | 0 | Moderate | No | United Kingdom | Scot | Headaches, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms | |
Shelly Maki Mercer | Female | 14484 | 35 | 61 | Left: 20/200 Right: 20/25 | Stress/Life Event | 0 | Moderate | Yes | United States | English | Peripheral Neuropathy, Fatigue, Eye Pain, MS, Other | |
Shirley Blowers | Female | 11778 | 52 | 62 | Left: 20/400 Right: 20/400 | Stress/Life Event | 0 | No | Yes | United Kingdom | English | Fatigue, Eye Pain | |
Stef Gore | Female | 11778 | 17 | 30 | Counting Fingers Light Perception Only | Unknown | 0 | Moderate | Yes | Australia | Australian | None | |
Stefan Hartmann | Male | 11778 | 17 | 30 | Left: 20/550 Right: 20/400 | Other/Unknown | 1 | No | No | Germany | German | Fatigue | |
Sue Cyr Gilman | Female | 11778 | 38 | 50 | Left: 20/400 Right: 20/600 | Stress/Life Event | 3 | Moderate | No | United States Latitude: 44.0992 | Anglo Saxon | Headaches, Peripheral Neuropathy, Fatigue, MS | |
Private Unavailable | Male | 11778 | 19 | 30 | Light Perception Only Light Perception Only | Unknown | 0 | Moderate | No | Australia | Anglo Saxon | Headaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain | |
Wayne Daniels | Male | 11778 | 21 | 62 | Left: 20/200 Right: 20/400 | Physical Injury/Trauma | 0 | Moderate | No | United States Latitude: 28.9489 | Anglo Saxon | None | |
William (Bill) Reid | Male | 11778 | 26 | 69 | Left: 20/1200 Right: 20/375 | Other/Unknown | 3 | No | No | Australia | English | Restless Leg Syndrome, Excessive Sweating, Auditory |
11778 | 14484 | 3460 | Other | |
Vision Average: | 20/544 | 20/434 | 20/345 | 20/232 |
Vision Median: | 20/415 | 20/400 | 20/400 | 20/200 |
Vision Average: | 20/400 | 20/600 | 20/600 | 20/400 |
Vision Range: | 2800 | 980 | 540 | 600 |
21755 views since 10/31/2012