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Name Gender Mutation Age Affected Age Vision Trigger History Colorblind Idebenone Location Heritage Symptoms Comments
NAMEGENDERMUTATIONAGE AFFECTEDAGEVISIONPOTENTIAL TRIGGER# OF AFFECTED FAMILY MEMBERSCOLOR
BLIND?
IDEBE
NONE?
LOCATIONMATERNAL HERITAGEADDITIONAL SYMPTOMSADDITIONAL COMMENTS
Pamela
Whittington Becker
Female117785259Light Perception Only
Right: 20/600
Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Eye Pain
Private
Unavailable
Female11778613Left: 20/500
Right: 20/500
Other/Unknown3NoNoUnited StatesAnglo SaxonNone
Helene
Merker
Female117785665Counting Fingers
Counting Fingers
Other/Unknown0NoNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Auditory
Stef
Gore
Female117781726Counting Fingers
Light Perception Only
Unknown0ModerateYesAustraliaAustralianNone
Shirley
Blowers
Female117785258Left: 20/400
Right: 20/400
Stress/Life Event0NoYesUnited KingdomEnglishFatigue, Eye Pain
Meulle
Aurélie
Female117782237Left: 20/1200
Right: 20/1200
Unknown1NoNoFranceBelgianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain
Gail
Buhler
Female117784348Left: 20/700
Right: 20/650
Other/Unknown1ModerateNoUnited StatesCaucasianNone
Chiang
Chia-en
Female11778237Left: 20/550
Right: 20/450
Stress/Life Event3ModerateNoTaiwan, Province of ChinaBelgianEye Pain
Jacqueline
Mack Cacenski
Female117782252Counting Fingers
Counting Fingers
Environmental Toxins6ModerateNoUnited StatesCaucasianHeadaches, Fatigue
Naomi
Harrington
Female117782029Counting Fingers
Counting Fingers
Other/Unknown1ModerateYesCanadaJapaneseNone
Pat
Morgan
FemaleDon't know5159Counting Fingers
Counting Fingers
Other/Unknown3NoNoUnited KingdomWelshHeadaches, Restless Leg Syndrome, Eye Pain, Auditory
Hannah
Averill
Female117781826Light Perception Only
Counting Fingers
Unknown2ModerateNoNew ZealandEuropeanHeadaches, Fatigue, Eye Pain, MS-like Symptoms, Other
Shelly
Maki Mercer
Female144843557Left: 20/200
Right: 20/25
Stress/Life Event0ModerateYesUnited StatesEnglishPeripheral Neuropathy, Fatigue, Eye Pain, MS, Other
Sue
Cyr Gilman
Female117783846Left: 20/400
Right: 20/600
Stress/Life Event3ModerateNoUnited States
Latitude:
44.0992
Anglo SaxonHeadaches, Peripheral Neuropathy, Fatigue, MS
Laura
Kolbe
Female34603040Light Perception Only
Light Perception Only
Other/Unknown1NoNoUnited KingdomEnglishMS, Auditory
Baiba
Vanaga
Female136375459Left: 20/400
Right: 20/600
Unknown0ModerateYesLatviaAnglo SaxonNone
Chrissie
Powell
FemaleDon't know2730Left: 20/0
Right: 20/0
Other/Unknown0ModerateNoUnited KingdomAnglo SaxonHeadaches
Maria
Johnson
Female117784953Counting Fingers
Counting Fingers
Prescription Drugs0ModerateNoUnited StatesAnglo SaxonNone
Maria
Pikulski
Female117784256Left: 20/0
Right: 20/0
Other/Unknown0ModerateNoUnited KingdomBritishFatigue, Excessive Sweating, MS, Auditory
Elaine
Leyba-Sauceda
Female94384048Left: 20/200
Right: 20/400
Unknown3NoNoUnited StatesUnknownHeadaches, Restless Leg Syndrome, Fatigue, MS-like Symptoms, Other
Lisa
MacGregor
Female3460342017Left: 20/63
Right: 20/60
Other/Unknown0NoNoCanada
Latitude:
49.8833
CaucasianHeadaches
Private
Unavailable
Female127192934Left: 20/0
Light Perception Only
Other/Unknown1ModerateNoUnited KingdomAnglo SaxonHeadaches
Lori
Black
Female1177822017Left: 20/400
Right: 20/400
Other/Unknown2ModerateYesUnited StatesArmenianNone
Christy
Damio Caroleo
Female117781340Left: 20/800
Right: 20/400
Stress/Life Event3ModerateNoUnited StatesIrishFatigue
Sharon
Macdonald
Female144843539Light Perception Only
Right: 20/400
Illness0ModerateNoUnited KingdomScotHeadaches, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
Private
Unavailable
Female144841620Left: 20/600
Right: 20/1000
Physical Injury/Trauma1NoNoUnited StatesEuropeanEye Pain, Auditory
Christine
Herbst
Female117786469Counting Fingers
Counting Fingers
Stress/Life Event2SevereNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, MS-like Symptoms
Brandon
Coleman
Male117781822Left: 20/80
Right: 20/125
Other...0ModerateYesPortsmouth United Kingdom1None
Jeremy
Poincenot
Male117781927Counting Fingers
Counting Fingers
Other/Unknown1NoYesUnited StatesDaneNone
Juha
Pilli-sihvola
Male117785664Counting Fingers
Right: 20/800
Unknown0NoNoFinland
Latitude:
62.3801
FinnHeadaches, Fatigue
Alex
Wisehart
Male117781622Counting Fingers
Counting Fingers
Environmental Toxins2SevereYesUnited StatesCaucasianNone
Fred
Wiggins
Male117786267Counting Fingers
Counting Fingers
Physical Injury/Trauma0NoYesUnited StatesAmericanHeadaches, Fatigue
Ioannis
Gman
Male117782138Left: 20/200
Right: 20/500
Other/Unknown0NoNoGreece
Latitude:
38.046
GreekNone
Brandon
Batten
Male117781322Left: 20/400
Right: 20/400
Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
James
Ferguson
MaleDon't know2334Counting Fingers
Light Perception Only
Physical Injury/Trauma0NoNoUnited KingdomAnglo SaxonNone
Nick
Esposito
Male34601938Left: 20/400
Right: 20/500
Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Fatigue
Alex
Brown
Male34601040Left: 20/140
Right: 20/90
Environmental Toxins1NoNoUnited StatesAnglo SaxonNone
s
j a
Male117782024Counting Fingers
Counting Fingers
Other/Unknown0NoYesUnited KingdomEnglishNone
Jared
Hara
Male11778114Light Perception Only
Light Perception Only
Environmental Toxins0NoNoUnited StatesCaucasianHeadaches
Wayne
Daniels
Male117782159Left: 20/200
Right: 20/400
Physical Injury/Trauma0ModerateNoUnited States
Latitude:
28.9489
Anglo SaxonNone
Giacomo
Padron Aicardi
Male144841623Left: 20/400
Right: 20/700
Prescription Drugs3SevereYesCanadaCanadianHeadaches, Eye Pain
Private
Unavailable
Male117781926Light Perception Only
Light Perception Only
Unknown0ModerateNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain
Scott
Robinson
Male117781623Left: 20/200
Right: 20/200
Other/Unknown1NoNoUnited StatesAmericanFatigue
Michael
McCray
MaleDon't know1651Left: 20/400
Right: 20/400
Other/Unknown0NoNoUnited StatesAnglo SaxonNone
Joe
Brinkley
Male144841632Left: 20/300
Right: 20/340
Alcohol0ModerateNoUnited StatesAnglo SaxonPeripheral Neuropathy, Eye Pain
William
(Bill) Reid
Male117782665Left: 20/1200
Right: 20/375
Other/Unknown3NoNoAustraliaEnglishRestless Leg Syndrome, Excessive Sweating, Auditory
Jon
Kyle Cauchi
Male117781126Left: 20/400
Right: 20/800
Other/Unknown0ModerateNoUnited StatesIrishHeadaches, Restless Leg Syndrome, Fatigue, Eye Pain
Jeremy
McClure
Male117781530Counting Fingers
Counting Fingers
Other/Unknown5ModerateNoAustraliaAnglo SaxonOther
Donovan
Justin Tose
Male117781135Counting Fingers
Counting Fingers
Unknown1ModerateNoSouth AfricaScotRestless Leg Syndrome, Eye Pain
Lewis
Watkins
Male117781928Counting Fingers
Counting Fingers
Other/Unknown0NoNoUnited KingdomWelshHeadaches, Fatigue
Pete
Sheppard
Male3460221819Counting Fingers
Counting Fingers
Illness1ModerateNoUnited KingdomBritishHeadaches, Peripheral Neuropathy, Fatigue
Private
Unavailable
MaleDon't know1843Counting Fingers
Counting Fingers
Other/Unknown3NoNoAustraliaAustralianNone
Noe
Cano
Male11778038Counting Fingers
Counting Fingers
Alcohol0ModerateYesUnited StatesMexicanFatigue
Brenda
Smith
Male117782351Light Perception Only
Counting Fingers
Illness6NoNoAustraliaAnglo SaxonRestless Leg Syndrome, Peripheral Neuropathy, Fatigue
Eugene
G. Schwartz
Male117781764Left: 20/500
Right: 20/600
Other/Unknown0NoNoUnited StatesGermanNone
Private
Unavailable
Male117781831Left: 20/800
Right: 20/800
Stress/Life Event0ModerateYesUnited StatesAmericanEye Pain
Brian
Weeden
Male144842842Light Perception Only
Light Perception Only
Other/Unknown3NoNoUnited StatesCaucasianFatigue, Excessive Sweating, MS-like Symptoms
Stefan
Hartmann
Male117781726Left: 20/550
Right: 20/400
Other/Unknown1NoNoGermanyGermanFatigue
Luke
Krickenbarger
Male117782234Left: 20/400
Right: 20/400
Other/Unknown0ModerateNoUnited StatesIrishNone
miguel
magallanes
Male11778816Left: 20/800
Right: 20/800
Other/Unknown0ModerateYesUnited States Minor Outlying IslandsAmericanHeadaches
John
Coughlin
MaleDon't know1163Left: 20/300
Right: 20/800
Other/Unknown1ModerateNoUnited States
Latitude:
27.9812
Anglo SaxonNone
Matt
Leverington
Male117782227Left: 20/400
Right: 20/400
Unknown0NoYesUnited KingdomAnglo SaxonFatigue, Eye Pain, Other
Ronny
Wolf
MaleDon't know3744Left: 20/6000
Right: 20/2400
Other/Unknown2ModerateYesNetherlandsEuropeanRestless Leg Syndrome, Peripheral Neuropathy, Fatigue, Excessive Sweating, Eye Pain, MS, Parkinson, Other
Luuk
van der Duim
Male117783140Left: 20/66
Right: 20/50
Alcohol0ModerateNoNetherlands
Latitude:
53.2185
DutchNone
Bob
Banks
Male144845557Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
John
Coughlin
MaleDon't know112017Left: 20/200
Right: 20/300
Other/Unknown1ModerateNoUnited States
Latitude:
27.9811
Anglo SaxonNone
Jamie
Scott
Male117781733Counting Fingers
Counting Fingers
Smoking1ModerateNoUnited KingdomBritishHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Auditory
Robert
Driscoll
MaleDon't know1340Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoUnited KingdomIrishHeadaches
Cliff
Ghrigsby
MaleDon't know141Left: 20/400
Right: 20/400
Other/Unknown4ModerateNoUnited StatesAnglo SaxonNone
Peter
Wolfe
Male117781631Light Perception Only
Light Perception Only
Other/Unknown1SevereNoUnited StatesIrishNone
Alvaro
Rueda Chifflet
Male117782235Counting Fingers
Counting Fingers
Unknown0ModerateNoSwedenOthersNone
Keith
Ellis
MaleDon't know1527Left: 20/400
Right: 20/1000
Other/Unknown2NoNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, Parkinson, Auditory
Keith
McGovern
Male3460811Left: 20/400
Right: 20/600
Other/Unknown1ModerateNoUnited StatesAmericanNone
Mark
Delmege
Male117782028Left: 20/450
Right: 20/450
Physical Injury/Trauma0NoNoUnited StatesAmericanNone
Private
Unavailable
Male1448409Left: 20/20
Right: 20/20
Other/Unknown0NoNoUnited States
Latitude:
42.022
AmericanFatigue, Excessive Sweating, Other
Bruno
Montbleau
Male117781937Left: 20/700
Right: 20/415
Physical Injury/Trauma2SevereNoCanadaCanadianHeadaches, Fatigue, Eye Pain
Eric
Nelson
Male117783361Left: 20/400
Right: 20/800
Unknown0ModerateNoUnited StatesAnglo SaxonNone
James
Crawford
Male11778852Left: 20/400
Right: 20/1200
Other/Unknown0NoNoAustraliaEnglishHeadaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain
Francesco
Cefarelli
Male142581829Left: 20/2
Right: 20/20
Smoking1ModerateYesItalyItalianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
Austin
Maier
Male117782228Left: 20/125
Right: 20/125
Alcohol0ModerateNoUnited StatesAnglo SaxonNone
George
Opie
MaleDon't know1752Light Perception Only
Light Perception Only
Other/Unknown1SevereYesUnited States
Latitude:
38.7619
CaucasianOther
Bryce
Anderson
Male117782021Counting Fingers
Right: 20/2800
Physical Injury/Trauma0SevereNoUnited StatesGermanHeadaches, Eye Pain
Alexandre
Fonseca
Male34602426Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoBrazilBrazilianHeadaches
Connor
Hook
Male144841928Left: 20/500
Right: 20/800
Alcohol1ModerateNoUnited StatesCaucasianHeadaches, Fatigue, Eye Pain, MS

11778144843460Other
Vision Average:20/53020/43420/34520/232
Vision Median:20/40020/40020/40020/200
Vision Mode:20/40020/60020/60020/400
Vision Range:2800980540600
Avg Age Onset:24242135

Overall Average Age of Onset: 24
Male Avg Age of Onset:19
Female Avg Age of Onset:32
Total participants: 84
57 Males and 27 Females
Males make up 68% of sample group
and females make up 32% of sample group


1668 views since 10/31/2012


© 2012 - Austin Maier