LHONDatabase  



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Instructions:

1.Your facebook ID is .
This will not be published, but will be used to identify you as a unique user on this site.2. Please enter as much data as possible. If you don't know your trigger, please choose "Don't Know".
3. If you have been given your vision in a format other than 20/x (e.g. 5/50) you may simply multiply both portions of the snellen fraction by the same number so that the numerator equals 20. The Snellen number (LogMAR number) remains the same. (e.g. 1/60 = (1*20)/(60*20) = 20/1200. If your vision is categorized as "Counting Fingers" or "Light Perception", simply enter CF or LP into the boxes accordingly.
4. You may organize the table by data points in a column by clicking on the links at the top of the table. (e.g. Name, Gender, Mutation, etc)
5. The form to enter your data is the last row in the table below, UNLESS you have already entered data. If you have already entered data, your row in the table will be editable. By default they are arranged alphabetically. Once you enter your data please click the "Submit" button which is either: below the table (For new users), or in the last column (For return visitors).
6. Advanced sorting options are available on the "View Only" page. These options allow you to sort the database by more than one field at a time. (e.g. Sort by gender, then vision).
Thank you for your data. :)

Show/Hide Elements
Name Gender Mutation Age Affected Age Vision Trigger History Colorblind Idebenone Location Heritage Symptoms Comments
NAMEGENDERMUTATIONAGE AFFECTEDAGEVISIONPOTENTIAL TRIGGER# OF AFFECTED FAMILY MEMBERSCOLOR
BLIND?
IDEBE
NONE?
LOCATIONMATERNAL HERITAGEADDITIONAL SYMPTOMSADDITIONAL COMMENTS
Juha
Pilli-sihvola
Male117785665Counting Fingers
Right: 20/800
Unknown0NoNoFinland
Latitude:
62.3801
FinnHeadaches, Fatigue
Ioannis
Gman
Male117782138Left: 20/200
Right: 20/500
Other/Unknown0NoNoGreece
Latitude:
38.046
GreekNone
Pamela
Whittington Becker
Female117785259Light Perception Only
Right: 20/600
Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Eye Pain
Private
Unavailable
Female11778613Left: 20/500
Right: 20/500
Other/Unknown3NoNoUnited StatesAnglo SaxonNone
Brandon
Batten
Male117781322Left: 20/400
Right: 20/400
Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
James
Ferguson
MaleDon't know2334Counting Fingers
Light Perception Only
Physical Injury/Trauma0NoNoUnited KingdomAnglo SaxonNone
Helene
Merker
Female117785665Counting Fingers
Counting Fingers
Other/Unknown0NoNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Auditory
Nick
Esposito
Male34601938Left: 20/400
Right: 20/500
Other/Unknown0ModerateNoUnited StatesAnglo SaxonHeadaches, Fatigue
Alex
Brown
Male34601040Left: 20/140
Right: 20/90
Environmental Toxins1NoNoUnited StatesAnglo SaxonNone
Jared
Hara
Male11778114Light Perception Only
Light Perception Only
Environmental Toxins0NoNoUnited StatesCaucasianHeadaches
Wayne
Daniels
Male117782159Left: 20/200
Right: 20/400
Physical Injury/Trauma0ModerateNoUnited States
Latitude:
28.9489
Anglo SaxonNone
Private
Unavailable
Male117781926Light Perception Only
Light Perception Only
Unknown0ModerateNoAustraliaAnglo SaxonHeadaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain
Scott
Robinson
Male117781623Left: 20/200
Right: 20/200
Other/Unknown1NoNoUnited StatesAmericanFatigue
Michael
McCray
MaleDon't know1651Left: 20/400
Right: 20/400
Other/Unknown0NoNoUnited StatesAnglo SaxonNone
Joe
Brinkley
Male144841632Left: 20/300
Right: 20/340
Alcohol0ModerateNoUnited StatesAnglo SaxonPeripheral Neuropathy, Eye Pain
William
(Bill) Reid
Male117782666Left: 20/1200
Right: 20/375
Other/Unknown3NoNoAustraliaEnglishRestless Leg Syndrome, Excessive Sweating, Auditory
Jon
Kyle Cauchi
Male117781127Left: 20/400
Right: 20/800
Other/Unknown0ModerateNoUnited StatesIrishHeadaches, Restless Leg Syndrome, Fatigue, Eye Pain
Jeremy
McClure
Male117781530Counting Fingers
Counting Fingers
Other/Unknown5ModerateNoAustraliaAnglo SaxonOther
Meulle
Aurélie
Female117782238Left: 20/1200
Right: 20/1200
Unknown1NoNoFranceBelgianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain
Donovan
Justin Tose
Male117781135Counting Fingers
Counting Fingers
Unknown1ModerateNoSouth AfricaScotRestless Leg Syndrome, Eye Pain
Lewis
Watkins
Male117781928Counting Fingers
Counting Fingers
Other/Unknown0NoNoUnited KingdomWelshHeadaches, Fatigue
Gail
Buhler
Female117784348Left: 20/700
Right: 20/650
Other/Unknown1ModerateNoUnited StatesCaucasianNone
Pete
Sheppard
Male3460221819Counting Fingers
Counting Fingers
Illness1ModerateNoUnited KingdomBritishHeadaches, Peripheral Neuropathy, Fatigue
Chiang
Chia-en
Female11778237Left: 20/550
Right: 20/450
Stress/Life Event3ModerateNoTaiwan, Province of ChinaBelgianEye Pain
Private
Unavailable
MaleDon't know1843Counting Fingers
Counting Fingers
Other/Unknown3NoNoAustraliaAustralianNone
Jacqueline
Mack Cacenski
Female117782252Counting Fingers
Counting Fingers
Environmental ToxinsMore than 5ModerateNoUnited StatesCaucasianHeadaches, Fatigue
Brenda
Smith
Male117782351Light Perception Only
Counting Fingers
IllnessMore than 5NoNoAustraliaAnglo SaxonRestless Leg Syndrome, Peripheral Neuropathy, Fatigue
Eugene
G. Schwartz
Male117781764Left: 20/500
Right: 20/600
Other/Unknown0NoNoUnited StatesGermanNone
Pat
Morgan
FemaleDon't know5159Counting Fingers
Counting Fingers
Other/Unknown3NoNoUnited KingdomWelshHeadaches, Restless Leg Syndrome, Eye Pain, Auditory
Brian
Weeden
Male144842842Light Perception Only
Light Perception Only
Other/Unknown3NoNoUnited StatesCaucasianFatigue, Excessive Sweating, MS-like Symptoms
Hannah
Averill
Female117781826Light Perception Only
Counting Fingers
Unknown2ModerateNoNew ZealandEuropeanHeadaches, Fatigue, Eye Pain, MS-like Symptoms, Other
Sue
Cyr Gilman
Female117783846Left: 20/400
Right: 20/600
Stress/Life Event3ModerateNoUnited States
Latitude:
44.0992
Anglo SaxonHeadaches, Peripheral Neuropathy, Fatigue, MS
Stefan
Hartmann
Male117781726Left: 20/550
Right: 20/400
Other/Unknown1NoNoGermanyGermanFatigue
Laura
Kolbe
Female34603040Light Perception Only
Light Perception Only
Other/Unknown1NoNoUnited KingdomEnglishMS, Auditory
Luke
Krickenbarger
Male117782234Left: 20/400
Right: 20/400
Other/Unknown0ModerateNoUnited StatesIrishNone
John
Coughlin
MaleDon't know1163Left: 20/300
Right: 20/800
Other/Unknown1ModerateNoUnited States
Latitude:
27.9812
Anglo SaxonNone
Luuk
van der Duim
Male117783140Left: 20/66
Right: 20/50
Alcohol0ModerateNoNetherlands
Latitude:
53.2185
DutchNone
Chrissie
Powell
FemaleDon't know2731Left: 20/0
Right: 20/0
Other/Unknown0ModerateNoUnited KingdomAnglo SaxonHeadaches
Bob
Banks
Male144845557Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoUnited StatesAnglo SaxonNone
John
Coughlin
MaleDon't know112017Left: 20/200
Right: 20/300
Other/Unknown1ModerateNoUnited States
Latitude:
27.9811
Anglo SaxonNone
Jamie
Scott
Male117781733Counting Fingers
Counting Fingers
Smoking1ModerateNoUnited KingdomBritishHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Auditory
Robert
Driscoll
MaleDon't know1340Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoUnited KingdomIrishHeadaches
Cliff
Ghrigsby
MaleDon't know141Left: 20/400
Right: 20/400
Other/Unknown4ModerateNoUnited StatesAnglo SaxonNone
Peter
Wolfe
Male117781631Light Perception Only
Light Perception Only
Other/Unknown1SevereNoUnited StatesIrishNone
Maria
Johnson
Female117784954Counting Fingers
Counting Fingers
Prescription Drugs0ModerateNoUnited StatesAnglo SaxonNone
Maria
Pikulski
Female117784256Left: 20/0
Right: 20/0
Other/Unknown0ModerateNoUnited KingdomBritishFatigue, Excessive Sweating, MS, Auditory
Alvaro
Rueda Chifflet
Male117782235Counting Fingers
Counting Fingers
Unknown0ModerateNoSwedenOthersNone
Elaine
Leyba-Sauceda
Female94384048Left: 20/200
Right: 20/400
Unknown3NoNoUnited StatesUnknownHeadaches, Restless Leg Syndrome, Fatigue, MS-like Symptoms, Other
Keith
Ellis
MaleDon't know1528Left: 20/400
Right: 20/1000
Other/Unknown2NoNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, Parkinson, Auditory
Keith
McGovern
Male3460812Left: 20/400
Right: 20/600
Other/Unknown1ModerateNoUnited StatesAmericanNone
Mark
Delmege
Male117782028Left: 20/450
Right: 20/450
Physical Injury/Trauma0NoNoUnited StatesAmericanNone
Private
Unavailable
Male14484010Left: 20/20
Right: 20/20
Other/Unknown0NoNoUnited States
Latitude:
42.022
AmericanFatigue, Excessive Sweating, Other
Bruno
Montbleau
Male117781937Left: 20/700
Right: 20/415
Physical Injury/Trauma2SevereNoCanadaCanadianHeadaches, Fatigue, Eye Pain
Eric
Nelson
Male117783361Left: 20/400
Right: 20/800
Unknown0ModerateNoUnited StatesAnglo SaxonNone
Lisa
MacGregor
Female3460342017Left: 20/63
Right: 20/60
Other/Unknown0NoNoCanada
Latitude:
49.8833
CaucasianHeadaches
Private
Unavailable
Female127192934Left: 20/0
Light Perception Only
Other/Unknown1ModerateNoUnited KingdomAnglo SaxonHeadaches
James
Crawford
Male11778853Left: 20/400
Right: 20/1200
Other/Unknown0NoNoAustraliaEnglishHeadaches, Restless Leg Syndrome, Peripheral neuropathy, Fatigue, Excessive Sweating, Eye Pain
Christy
Damio Caroleo
Female117781341Left: 20/800
Right: 20/400
Stress/Life Event3ModerateNoUnited StatesIrishFatigue
Sharon
Macdonald
Female144843539Light Perception Only
Right: 20/400
Illness0ModerateNoUnited KingdomScotHeadaches, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
Austin
Maier
Male117782228Left: 20/125
Right: 20/125
Alcohol0ModerateNoUnited StatesAnglo SaxonNone
Private
Unavailable
Female144841621Left: 20/600
Right: 20/1000
Physical Injury/Trauma1NoNoUnited StatesEuropeanEye Pain, Auditory
Bryce
Anderson
Male117782021Counting Fingers
Right: 20/2800
Physical Injury/Trauma0SevereNoUnited StatesGermanHeadaches, Eye Pain
Alexandre
Fonseca
Male34602426Left: 20/600
Right: 20/600
Other/Unknown0ModerateNoBrazilBrazilianHeadaches
Christine
Herbst
Female117786469Counting Fingers
Counting Fingers
Stress/Life Event2SevereNoUnited StatesAnglo SaxonHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, MS-like Symptoms
Connor
Hook
Male144841928Left: 20/500
Right: 20/800
Alcohol1ModerateNoUnited StatesCaucasianHeadaches, Fatigue, Eye Pain, MS
Brandon
Coleman
Male117781822Left: 20/80
Right: 20/125
Other...0ModerateYesPortsmouth United Kingdom1None
Jeremy
Poincenot
Male117781927Counting Fingers
Counting Fingers
Other/Unknown1NoYesUnited StatesDaneNone
Alex
Wisehart
Male117781622Counting Fingers
Counting Fingers
Environmental Toxins2SevereYesUnited StatesCaucasianNone
Fred
Wiggins
Male117786267Counting Fingers
Counting Fingers
Physical Injury/Trauma0NoYesUnited StatesAmericanHeadaches, Fatigue
Stef
Gore
Female117781726Counting Fingers
Light Perception Only
Unknown0ModerateYesAustraliaAustralianNone
Shirley
Blowers
Female117785258Left: 20/400
Right: 20/400
Stress/Life Event0NoYesUnited KingdomEnglishFatigue, Eye Pain
s
j a
Male117782024Counting Fingers
Counting Fingers
Other/Unknown0NoYesUnited KingdomEnglishNone
Giacomo
Padron Aicardi
Male144841623Left: 20/400
Right: 20/700
Prescription Drugs3SevereYesCanadaCanadianHeadaches, Eye Pain
Noe
Cano
Male11778038Counting Fingers
Counting Fingers
Alcohol0ModerateYesUnited StatesMexicanFatigue
Naomi
Harrington
Female117782029Counting Fingers
Counting Fingers
Other/Unknown1ModerateYesCanadaJapaneseNone
Private
Unavailable
Male117781831Left: 20/800
Right: 20/800
Stress/Life Event0ModerateYesUnited StatesAmericanEye Pain
Shelly
Maki Mercer
Female144843558Left: 20/200
Right: 20/25
Stress/Life Event0ModerateYesUnited StatesEnglishPeripheral Neuropathy, Fatigue, Eye Pain, MS, Other
Baiba
Vanaga
Female136375459Left: 20/400
Right: 20/600
Unknown0ModerateYesLatviaAnglo SaxonNone
miguel
magallanes
Male11778817Left: 20/800
Right: 20/800
Other/Unknown0ModerateYesUnited States Minor Outlying IslandsAmericanHeadaches
Matt
Leverington
Male117782227Left: 20/400
Right: 20/400
Unknown0NoYesUnited KingdomAnglo SaxonFatigue, Eye Pain, Other
Ronny
Wolf
MaleDon't know3744Left: 20/6000
Right: 20/2400
Other/Unknown2ModerateYesNetherlandsEuropeanRestless Leg Syndrome, Peripheral Neuropathy, Fatigue, Excessive Sweating, Eye Pain, MS, Parkinson, Other
Lori
Black
Female1177822017Left: 20/400
Right: 20/400
Other/Unknown2ModerateYesUnited StatesArmenianNone
Francesco
Cefarelli
Male142581829Left: 20/2
Right: 20/20
Smoking1ModerateYesItalyItalianHeadaches, Restless Leg Syndrome, Fatigue, Excessive Sweating, Eye Pain, MS-like Symptoms
George
Opie
MaleDon't know1752Light Perception Only
Light Perception Only
Other/Unknown1SevereYesUnited States
Latitude:
38.7619
CaucasianOther
NAMEGENDERMUTATIONAGE AFFECTEDAGEVISIONPOTENTIAL TRIGGERFAMILY HISTORYCOLORBLIND?IDEBENONE?LOCATIONMATERNAL HERITAGEAdditional SymptomsAdditional Comments

Publish Name:
No
Yes
M
F
11778
3460
14484
Other
Don't Know
Mutation #:
Enter age (in years) you became affected: Birthdate
(Not shown)


Left:
Enter CF for counting fingers. LP for light perception.
20/
Right:
20/
Colorblind
No
Moderate
Severe
Taking Idebenone
No
Yes
Select Country
Maternal ethnic background:
Other Symptoms
Headaches
Restless Leg Syndrome
Numbness in Extremities
Fatigue
Excessive Sweating
Eye Pain
MS-like Symptoms
Wolfe-Parkinson-White
Auditory Issues
Other
11778144843460Other
Vision Average:20/53020/43420/34520/232
Vision Median:20/40020/40020/40020/200
Vision Average:20/40020/60020/60020/400
Vision Range:2800980540600

2706 views since 10/31/2012


© 2012 - Austin Maier